Thank you for my Kidney Patient Educational Scholarship!

Dear National Kidney Foundation of Utah & Idaho,

I’d like to thank everyone for the wonderful work/service you do changing lives; I especially want to thank all those that played a part in and made my receiving this Kidney Patient Educational Scholarship possible. I understand that the majority of the donations come from Kidney Kars donations. So my parents are donating their 2003 Acura to you when we arrive to Utah. I so look forward to continuing my education and one day hope to be a doctor, like so many doctors who cared for me as a kid when I was sick with kidney failure.  I want to bless the lives, and pay the blessings forward!  This scholarship makes this possible! I am extremely grateful for the opportunity to make the most out of y newfound energy and live!

Sincerely,

Kendon H.

Again thank you for everything, may the kidney foundation and all it’s employees be blessed for all their efforts

August 18, 2019
Dear National Kidney Foundation of Utah ,
My wife Nicole and I would like to express utmost thanks for the one time payment that applies to help with our rent . It came at a much needed time and has truly been a blessing and a miracle in our lives .
It has been a hard year for my wife and I. My kidney function started to decline drastically last December (2018). I was treated for sepsis in March due to an infection which resulted in cellulitis caused by kidney failure . In April we were in a serious car accident in which my wife broke her ankle. She was out of work for nine weeks and I was her caretaker even though I was currently sick.
In July my kidney dropped below 15% and I started dialysis. I had surgery just a week earlier to put in my fistula but required  AV access in the chest because the fistula wasn’t quite ready.
Currently I’m in dialysis and doing physical therapy for the accident but also neuropathy and muscle failure caused by sepsis .
It’s been an emotional roller coaster for us this whole year, which is why I described this assistance as a miracle, because that’s truly what it is. We couldn’t be more thankful for the timeliness or help, and for that our hearts are full of gratitude .
Again thank you for everything, may the kidney foundation and all it’s employees be blessed for all their efforts .
Sincerely ,
Matt and Nicole O

Utah County Sheriff’s sergeant honored for donating kidney to save friend’s life

https://www.heraldextra.com/news/local/utah-county-sheriff-s-sergeant-honored-for-donating-kidney-to/article_ddc45e9d-7412-55bb-9628-372b1dd004de.html?fbclid=IwAR1V6aRJu0-bo0PbaWzvz8_eYGeDlKimxykmgrsHZbCQPP1bfXa0REkn2fk

We love Utah for its generosity. How awesome that in a small town like Provo, in a small state like Utah we have such generous donors and humanitarians?  Sgt. Spencer Cannon offered his kidney up the same way he might have offered a neighbor a cup of flour — at least, that’s how his friend Ed Cameron describes the phone call that changed both men’s lives.

The two men have been like brothers for the past 18 years, ever since the two neighbors first met at church in American Fork.

When he was in his 40s, Cameron’s health began seriously deteriorating. First, he had a heart attack, then he found out his kidneys were only functioning at about 16 percent. By last year, Cameron’s kidneys were functioning at only 2 percent, prompting him to start dialysis.

“Dialysis is nothing but human torture until death,” Cameron said. “So I feel really sorry for those that are literally sitting and waiting for a kidney from anyone.”

After finding out his family members were unable to donate the organ for him, Cameron says he posted a Facebook status letting people know he was looking for a donor. Cannon was the first to call.

“He said, ‘You really need a kidney?’ Then, just as if he were offering a neighbor a cup of flour, a cup of milk, or a cup of sugar, he said, ‘I’ll give you my kidney,’” Cameron said.

Cannon admitted he hadn’t really thought about it before offering — but once he made the offer, he was serious about following through. He’s been uncomfortable with the attention he’s received for the act, including receiving a Hero plaque from the Utah Chapter of Freedoms Foundation at Valley Forge at a ceremony in Salt Lake City on Wednesday.

Cannon was confirmed as a match for Cameron in July, but delays kept the surgery from happening until November, just a few days before Thanksgiving.

“I don’t like this kind of attention,” Cannon said just before receiving the award. “I didn’t do it for that reason … The only thing that matters to me is that my friend’s alive and he’s got a bright future.”

The only reason Cannon tolerates the attention, he said, is in hopes of educating other people about organ donation.

“They can realize, you know what, I could do this too,” Cannon said. “(They) could at least be on the donor registry, if not a live organ donor.”

Both men say they’re feeling good at nearly three months out from surgery. Cannon is back at work, and Cameron has been back to the gym a couple of times. Cameron now has his sights set on creating a live kidney donor registry for those who want to follow in Cannon’s footsteps. He sported a purple bracelet that said, “All you need is one.”

“That’s my new mission, since I have a new lease on life,” Cameron said. “That one kidney changed my whole entire life around.”

 

Kidney Patient Thanks Utah Kidney Kars Donors for Help.

Over the last year, my life has changed.  My kidneys failed about a year ago and I have had to go on dialysis.
The changes in my life although difficult, they have been assisted with the help of the doctors and nurses at the dialysis center but also with the National Kidney Foundation.
Besides adjusting emotionally to the medical conditions I now face, dialysis also brings financial hardships to a very tight and limited budget.
Besides the cost of the treatments there has been other hardships not anticipated.
I live in rural Utah and the nearest dialysis center is about 90 miles away.  The cost of traveling 3 times a week is time consuming but also expensive for the fuel and transportation costs.
I am very grateful for the help the NKFU has given to offset some of these transportation costs.
This help has come from donations to NKFU from various individual and corporate donors.  THANK YOU for making this a little easier for those of us that are now dependent on medical treatments to enjoy life each day.
Sincerely,
L. Kunzler

Letter from desperate Aunt on behalf of her nephew on dialysis.

We receive letters like this every day, and are so grateful to be able to do something to help.  Because of your Kidney Kars donation (using the local Utah/Idaho website www.towKars.org) we have funding available for patients like Victor and his family. Thank you for your Kidney Kar Donation in Utah or Idaho.  The funding that comes from Kidney Kars Donations is put to immediate good use locally and we are very grateful for your support.

Dear National Kidney Foundation of Utah & Idaho,

My nephew is 12 years old and is on kidney dialysis. He lives in  Idaho but Primary Children’s hospital in Salt Lake City, UT is providing care for him. He is being sent home today, so he can start doing home dialysis, but it has been very expensive to drive from Victor to Salt Lake multiple times a week prior to him coming home. Is there any financial assistance program available for my brother, who is a single dad, raising 2 kids on his own, for these type of expenses? Also the medical supplies and other supplies needed for home dialysis treatment over the next 6 months at minimum. I am trying to assist my brother as much as possible with the financial end of things for my nephew’s care including reconciliation of medical bills, reaching out for financial assistance and setting up payment plans with doctor’s and hospitals for care received already. If you could email me with any information that may be helpful I would appreciate it. Thank you for all your assistance.
Jacqueline W.

Worlds Largest Gathering of Transplant Recipients Held in Utah

SALT LAKE CITY — More than 500 people gathered at the Transplant Games of America closing ceremony Tuesday night to break the Guinness World Records title for the largest gathering of organ transplant recipients.

In all, 540 people gathered at the event held at the Salt Palace Convention Center to break the previous record of 438 people set May 12 by Baskent University in Turkey, according to One Legacy spokeswoman Tania Llavaneras in a statement. One Legacy is a nonprofit company that focuses on organ donations in California as a sponsor of the Donate Life’s Transplant Games of America.

Those who participated in the record-breaking event were recipients of everything from heart to kidney or any other organ donation.

The Transplant Games ran from Aug. 2 through Tuesday with those who received organ donations, living donors and others impacted by organ donations competing in multiple sporting events. Llavaneras said it was also an event to allow those who received organ donations a place to connect and celebrate.

The event’s website notes the event is meant to raise awareness for “organ, cornea, bone marrow and tissue donation through the lives of the athlete-recipients and the lasting legacy of their donors.”

Dialysis Patient thanks National Kidney Foundation of Utah & Idaho

Dear Ms. Deen Vetterli,
Thank you for your time, energy, and personal efforts in seeking grants and offering Patient Service programs to assist patients like me
with life essential perks and benefits to lighten our burden while we undergo life saving dialysis treatments.
With my first hand experience, I just started to cry and shake because the Kidney Foundation came through for me again. The MGC – Maverick Gasoline Card
was a much needed blessing in the reduction of my monthly fuel costs. In my situation, I drive 3 hours back and forth to get to the closest dialysis center.
Help with my fuel costs is crucial for me to continue with consistent treatments along with increasing my healthy emotional well being and lifting my spirits too.
Finally, what I love about the National Kidney Foundation of Utah and Idaho™, is that money donations actually filter down to the patients and not
all the currency goes towards the administrative costs.This is a great organization to give your donations to because they really reach the patients.
I know from first hand experience.
See everyone at the National Kidney Foundation of Utah and Idaho™ kidney walk at Thanksgiving Point!
Mrs. M. Whitaker

Coaches Kalani Sitake (BYU) and Kyle Whittingham (U OF U) help raise money for Kidney Disease and Organ Donor Awareness

“No one in the country has had the enormous gift that we’ve had for 29 years” said Deen Vetterli, the CEO.  Ms. Vetterli started the National Kidney Foundation of Utah & Idaho in 1987 at the insistence of her Sister Glenna Shapiro (the Then CEO of the Arizona Kidney Foundation).  In 1986 Senator Jake Garn gave his kidney to his daughter Susan, and then flew into space to orbit the earth in a spaceship with just one kidney.  It was auspicious timing as the science of living kidney donation was just becoming mainstream.  After Senator Garn agreed to Chair the Board of Directors for Utah, Ms. Vetteri began thinking of ways to bring more highly visible, highly respected members of the community on Board.  Then one day, while walking through the grocery store the idea struck her.  She’d call LaVell Edwards (BYU’s then head coach of a winning football program and the cradle of two Heinemann Trophy Winners) to see what he thought of an idea for a “Rivalry For Charity Golf Tournament.”  Ms. Vetterli’s Husband, Dick Vetterli (Professor of the Political Science Department at BYU, and former BYU football quarterback) had the idea to ask the loser of the round of golf, sing the winning coaches fight song.  LaVell Edwards (for whom they eventually named the BYU Football Stadium) thought it was brilliant.  That was 29 years ago.  The rivalry started with LaVell Edwards and Ron McBride – who have been coming together to the Golf Tournament for years, until Coach Edwards passed away in 2017.  “No other Rivalry, no other State, No other NKF affiliate has enjoyed the long-standing support of the coaches like we’ve had. Kidney Patients in Utah don’t even understand what this drawn out ‘rivalry’ has meant to their cause.”  Through the years, as the coaches, and conferences have changed so had the flavor and pitch of the rivalry has shifted to something that looks more like camaraderie and good sportsmanship. Though BYU and U of U have different goals, both coaches Sitake and Whittingham are undoubtedly two of Utah’s greatest humanitarians, offering their high status, celebrated positions and the public’s love of football,  to draw awareness to the plight of Utah & Idaho patients with kidney disease and those who still need a kidney transplant.  The National Kidney Foundation of Utah & Idaho, throughout the years has relied upon the good will of Utah’s big hearted, high status champions.  We Thank Coach Sitake and Coach Whittingham for taking time out of their incredibly busy June Schedules to join us each year to play golf, raise money and bring awareness to our mission.  More people die of kidney disease than breast or prostate cancer, one in  eight Americans is affected by kidney disease, (at the time of this writing) 20 people die each awaiting a kidney transplant.  Please, consider becoming an organ donor. But in the meantime, donate a car to Kidney Kars, or support other efforts like the Kidney Walk or Kidney Golf Tournament to help lighten the burden and improve the quality of life for Utah dialysis and transplant patients.

29th Annual National Kidney Foundation of Utah & Idaho Golf Tournament

https://www.ksl.com/?sid=46347179&nid=294&title=college-football-talking-season-is-here-but-first-the-coaches-go-golfing

For 29 years, the coaching staffs at BYU and Utah have come together in June to support the National Kidney Foundation of Utah and Idaho for a charity golf event raising thousands of dollars annually for the publicly funded nonprofit organization.

 

But with new NCAA legislation extending the recruiting period into June and both schools offering seven-on-seven camps deep into the summer, both BYU coach Kalani Sitake and Utah’s Kyle Whittingham had plenty of conflicts.

Neither one of them wanted to miss the event Monday, though — Sitake even got a speeding ticket as he drove from Provo to Hidden Valley County Club in Sandy to arrive in time for the annual luncheon.

“Even coaches get speeding tickets,” Sitake quipped.

Monday’s luncheon was appointment viewing for Whittingham, too. Even without the obligation of the losing coach singing the opposing school’s fight song.

“June is a lot more busy for coaches than it used to be, with the satellite camps and more official visits in June,” he said. “It’s a lot different than it once was, but I just have to make time for this.”

The event began with legendary BYU coach LaVell Edwards and has brought together every coach in the rivalry since, including Utah’s Ron McBride — still seated at the center table, across from Sitake and next to former BYU and NFL tight end Chad Lewis.

To Sitake’s right sat Whittingham, laughing like a buddy-cop duo of former coaching colleagues who played at the same school and coached together at a rival institution.

In those 29 years, the group has raised funds to help the roughly 468,000 Americans with kidney disease who are receiving dialysis treatment or the 1,316 people from Utah and Idaho currently awaiting a life-saving organ transplant.

“It’s the cause that matters, and I’m honored to be affiliated with it for so many years,” Whittingham said, “as well as coach McBride before that, and I think even coach (Jim) Fassel before him. It does a lot of good for the National Kidney Foundation, and I’m honored to be a part of it.”

While getting ready for a season where the Utes look to build off the only successful postseason in Pac-12 football, and as the Cougars try to turn things around from last year’s disastrous 4-9 campaign, it was good to take time away from the grind of 24/7 college football.

The rest will come soon enough.

“You go through these parts where you know it’s around the corner,” Sitake said. “The hardest part is vacation; you need to take time off. But if everything is done correctly, I think we will be ready. I’ll spend some time with the family in July, but right now, I’m pleased with how hard everyone is working — especially the players.”

 

Thank you Letter from Grateful Idaho Kidney Patient

This is a thank you letter from a local Idaho kidney patients thanking the National Kidney Foundation of Utah & Idaho for our patient services.
so, by extension thank you to everyone who has ever donated a car in Utah or Idaho to www.towKars.org
To Whom it may Concern:
Please accept my sincere thank and deep appreciation for your assistance with my Idaho Power bill.
As I have been on dialysis for over six years, and am 67 years old, I am only able to work a few hours each week.  The old doublewide mobile home where I live is inexpensive to rent, but the heating bills from November through April each year are very, very expensive.  Without your kind assistance, I would not be able to pay my power bills for these months.  I try to pay down my balance, but I end up still owing hundreds of dollars every year in May.  Honestly, without your support and assistance, I would very likely be homeless by now. I truly thank you from the bottom of my heart.
With deepest appreciation,
Sincerely,
F.A. Self