Letter from desperate Aunt on behalf of her nephew on dialysis.

We receive letters like this every day, and are so grateful to be able to do something to help.  Because of your Kidney Kars donation (using the local Utah/Idaho website www.towKars.org) we have funding available for patients like Victor and his family. Thank you for your Kidney Kar Donation in Utah or Idaho.  The funding that comes from Kidney Kars Donations is put to immediate good use locally and we are very grateful for your support.

Dear National Kidney Foundation of Utah & Idaho,

My nephew is 12 years old and is on kidney dialysis. He lives in  Idaho but Primary Children’s hospital in Salt Lake City, UT is providing care for him. He is being sent home today, so he can start doing home dialysis, but it has been very expensive to drive from Victor to Salt Lake multiple times a week prior to him coming home. Is there any financial assistance program available for my brother, who is a single dad, raising 2 kids on his own, for these type of expenses? Also the medical supplies and other supplies needed for home dialysis treatment over the next 6 months at minimum. I am trying to assist my brother as much as possible with the financial end of things for my nephew’s care including reconciliation of medical bills, reaching out for financial assistance and setting up payment plans with doctor’s and hospitals for care received already. If you could email me with any information that may be helpful I would appreciate it. Thank you for all your assistance.
Jacqueline W.

Worlds Largest Gathering of Transplant Recipients Held in Utah

SALT LAKE CITY — More than 500 people gathered at the Transplant Games of America closing ceremony Tuesday night to break the Guinness World Records title for the largest gathering of organ transplant recipients.

In all, 540 people gathered at the event held at the Salt Palace Convention Center to break the previous record of 438 people set May 12 by Baskent University in Turkey, according to One Legacy spokeswoman Tania Llavaneras in a statement. One Legacy is a nonprofit company that focuses on organ donations in California as a sponsor of the Donate Life’s Transplant Games of America.

Those who participated in the record-breaking event were recipients of everything from heart to kidney or any other organ donation.

The Transplant Games ran from Aug. 2 through Tuesday with those who received organ donations, living donors and others impacted by organ donations competing in multiple sporting events. Llavaneras said it was also an event to allow those who received organ donations a place to connect and celebrate.

The event’s website notes the event is meant to raise awareness for “organ, cornea, bone marrow and tissue donation through the lives of the athlete-recipients and the lasting legacy of their donors.”

Dialysis Patient thanks National Kidney Foundation of Utah & Idaho

Dear Ms. Deen Vetterli,
Thank you for your time, energy, and personal efforts in seeking grants and offering Patient Service programs to assist patients like me
with life essential perks and benefits to lighten our burden while we undergo life saving dialysis treatments.
With my first hand experience, I just started to cry and shake because the Kidney Foundation came through for me again. The MGC – Maverick Gasoline Card
was a much needed blessing in the reduction of my monthly fuel costs. In my situation, I drive 3 hours back and forth to get to the closest dialysis center.
Help with my fuel costs is crucial for me to continue with consistent treatments along with increasing my healthy emotional well being and lifting my spirits too.
Finally, what I love about the National Kidney Foundation of Utah and Idaho™, is that money donations actually filter down to the patients and not
all the currency goes towards the administrative costs.This is a great organization to give your donations to because they really reach the patients.
I know from first hand experience.
See everyone at the National Kidney Foundation of Utah and Idaho™ kidney walk at Thanksgiving Point!
Mrs. M. Whitaker

Coaches Kalani Sitake (BYU) and Kyle Whittingham (U OF U) help raise money for Kidney Disease and Organ Donor Awareness

“No one in the country has had the enormous gift that we’ve had for 29 years” said Deen Vetterli, the CEO.  Ms. Vetterli started the National Kidney Foundation of Utah & Idaho in 1987 at the insistence of her Sister Glenna Shapiro (the Then CEO of the Arizona Kidney Foundation).  In 1986 Senator Jake Garn gave his kidney to his daughter Susan, and then flew into space to orbit the earth in a spaceship with just one kidney.  It was auspicious timing as the science of living kidney donation was just becoming mainstream.  After Senator Garn agreed to Chair the Board of Directors for Utah, Ms. Vetteri began thinking of ways to bring more highly visible, highly respected members of the community on Board.  Then one day, while walking through the grocery store the idea struck her.  She’d call LaVell Edwards (BYU’s then head coach of a winning football program and the cradle of two Heinemann Trophy Winners) to see what he thought of an idea for a “Rivalry For Charity Golf Tournament.”  Ms. Vetterli’s Husband, Dick Vetterli (Professor of the Political Science Department at BYU, and former BYU football quarterback) had the idea to ask the loser of the round of golf, sing the winning coaches fight song.  LaVell Edwards (for whom they eventually named the BYU Football Stadium) thought it was brilliant.  That was 29 years ago.  The rivalry started with LaVell Edwards and Ron McBride – who have been coming together to the Golf Tournament for years, until Coach Edwards passed away in 2017.  “No other Rivalry, no other State, No other NKF affiliate has enjoyed the long-standing support of the coaches like we’ve had. Kidney Patients in Utah don’t even understand what this drawn out ‘rivalry’ has meant to their cause.”  Through the years, as the coaches, and conferences have changed so had the flavor and pitch of the rivalry has shifted to something that looks more like camaraderie and good sportsmanship. Though BYU and U of U have different goals, both coaches Sitake and Whittingham are undoubtedly two of Utah’s greatest humanitarians, offering their high status, celebrated positions and the public’s love of football,  to draw awareness to the plight of Utah & Idaho patients with kidney disease and those who still need a kidney transplant.  The National Kidney Foundation of Utah & Idaho, throughout the years has relied upon the good will of Utah’s big hearted, high status champions.  We Thank Coach Sitake and Coach Whittingham for taking time out of their incredibly busy June Schedules to join us each year to play golf, raise money and bring awareness to our mission.  More people die of kidney disease than breast or prostate cancer, one in  eight Americans is affected by kidney disease, (at the time of this writing) 20 people die each awaiting a kidney transplant.  Please, consider becoming an organ donor. But in the meantime, donate a car to Kidney Kars, or support other efforts like the Kidney Walk or Kidney Golf Tournament to help lighten the burden and improve the quality of life for Utah dialysis and transplant patients.

29th Annual National Kidney Foundation of Utah & Idaho Golf Tournament

https://www.ksl.com/?sid=46347179&nid=294&title=college-football-talking-season-is-here-but-first-the-coaches-go-golfing

For 29 years, the coaching staffs at BYU and Utah have come together in June to support the National Kidney Foundation of Utah and Idaho for a charity golf event raising thousands of dollars annually for the publicly funded nonprofit organization.

 

But with new NCAA legislation extending the recruiting period into June and both schools offering seven-on-seven camps deep into the summer, both BYU coach Kalani Sitake and Utah’s Kyle Whittingham had plenty of conflicts.

Neither one of them wanted to miss the event Monday, though — Sitake even got a speeding ticket as he drove from Provo to Hidden Valley County Club in Sandy to arrive in time for the annual luncheon.

“Even coaches get speeding tickets,” Sitake quipped.

Monday’s luncheon was appointment viewing for Whittingham, too. Even without the obligation of the losing coach singing the opposing school’s fight song.

“June is a lot more busy for coaches than it used to be, with the satellite camps and more official visits in June,” he said. “It’s a lot different than it once was, but I just have to make time for this.”

The event began with legendary BYU coach LaVell Edwards and has brought together every coach in the rivalry since, including Utah’s Ron McBride — still seated at the center table, across from Sitake and next to former BYU and NFL tight end Chad Lewis.

To Sitake’s right sat Whittingham, laughing like a buddy-cop duo of former coaching colleagues who played at the same school and coached together at a rival institution.

In those 29 years, the group has raised funds to help the roughly 468,000 Americans with kidney disease who are receiving dialysis treatment or the 1,316 people from Utah and Idaho currently awaiting a life-saving organ transplant.

“It’s the cause that matters, and I’m honored to be affiliated with it for so many years,” Whittingham said, “as well as coach McBride before that, and I think even coach (Jim) Fassel before him. It does a lot of good for the National Kidney Foundation, and I’m honored to be a part of it.”

While getting ready for a season where the Utes look to build off the only successful postseason in Pac-12 football, and as the Cougars try to turn things around from last year’s disastrous 4-9 campaign, it was good to take time away from the grind of 24/7 college football.

The rest will come soon enough.

“You go through these parts where you know it’s around the corner,” Sitake said. “The hardest part is vacation; you need to take time off. But if everything is done correctly, I think we will be ready. I’ll spend some time with the family in July, but right now, I’m pleased with how hard everyone is working — especially the players.”

 

Thank you Letter from Grateful Idaho Kidney Patient

This is a thank you letter from a local Idaho kidney patients thanking the National Kidney Foundation of Utah & Idaho for our patient services.
so, by extension thank you to everyone who has ever donated a car in Utah or Idaho to www.towKars.org
To Whom it may Concern:
Please accept my sincere thank and deep appreciation for your assistance with my Idaho Power bill.
As I have been on dialysis for over six years, and am 67 years old, I am only able to work a few hours each week.  The old doublewide mobile home where I live is inexpensive to rent, but the heating bills from November through April each year are very, very expensive.  Without your kind assistance, I would not be able to pay my power bills for these months.  I try to pay down my balance, but I end up still owing hundreds of dollars every year in May.  Honestly, without your support and assistance, I would very likely be homeless by now. I truly thank you from the bottom of my heart.
With deepest appreciation,
Sincerely,
F.A. Self

Me, doing taxes without a CPA

Right?  lol.  I hope you all got your Kidney Kars tax deduction from www.towKars.org before you filed your 2017 tax return.

April 17, 2017 is Tax Day. The National Kidney Foundation of Utah and Idaho has received close to 3,000 Kidney Kars donations this year.  In the past 3 weeks, we’ve had 150 requests Kidney Kars Donors asking for their tax receipts.  Many call or write us angrily accusing us of never sending their tax receipts.  Almost 98% of the time the receipt was in fact, already sent (time stamped by our database, and our email server).  However, 50% of the time, the receipt was emailed to a bogus or junk mail email account, that the donors themselves provided at the onset of the donation process. The other 48% of missing tax receipts made their way into spam (because of our .org address) or was straight up overlooked and then deleted by the donor.

I have no problem with junk email addresses.  I have one (don’t we all?). But if you want a TAX RECEIPT for your charitable contribution, consider giving your ACTUAL email address for a start.  The National Kidney Foundation of Utah & Idaho promises never to send junk mail. But I understand. There are a lot of charities that send a lot of additional promotions or continued appeals.  I guess Kidney Kars donations are the exception to that rule.  We’ve so carefully guarded the email addresses and pledged to use them only for tax purposes.   Anyway, to all of those who donated their car to Kidney Kars of Utah & Idaho for a tax deduction, we hope you get a tax return or that your payment to the IRS was not too painful.  Most specifically, we hope your Kidney Kars donation (free towing, tax deductible!) helped lower your tax liability.  So on behalf of the 3,000 Utah and Idaho kidney patients who benefit from the health and human medical financial services our programs provide, we thank you!

Donate a Kidney, Donate a Car, Both Save Lives

The National Kidney Foundation of Utah & Idaho partners with Yes Utah! and Yes Idaho!

Organ Donor registry to promote organ donation. As of today, nearly 114,000 people are on the transplant waiting list, and over 2/3 of those on the list need kidneys, so organ donation is very important to the National Kidney Foundation. Kidney disease has no cure, only dialysis treatments or a kidney transplant. We opt for the latter if the patient qualifies and is healthy enough for a transplant. If you are interested in becoming a kidney donor in Utah, please visit https://www.yesutah.org/ or in Idaho at https://www.yesidaho.org/

In the meantime, donating your old car for a tax deduction (and free towing) to the National Kidney Foundation of Utah and Idaho is how we can continue to lighten the burden, and improve the quality of life for Utah and Idaho kidney patients while they await a life saving kidney.  So donate a kidney, donate a car, both save lives.  Donate your old car online to Kidney Kars at https://www.towKars.org

Elder Dale G. Renlund Shares Story of Faith About Organ Donation

On Saturday, March 31st LDS General Conference, LDS Church Authority, Elder Dale G. Renlund, a cardiologist shared a beautiful experience about a family’s faith and experience regarding organ donation. We will post the transcript when it is available.  We’ve attached the link to the talk.

https://www.lds.org/general-conference/2018/04/media/session_2_talk_12/5761587735001?lang=eng

 

 

 

Angel Elsie Saving Lives

Elsie’s Miracle

April 1st between sessions of the LDS General Conference, KSL ran a 25 minute special about our Angel Family, The Mahes. Three years ago, 3 year old Elsie Mahe’s life was cut short after a tragic accident in the family home, but her legacy lives on. The Mahe family says while they didn’t receive their miracle for Elsie, there were many miracles from Elsie. Elsie’s organs were donated to save many lives, but the miracles go far beyond this.  Her  sparkle and spirit of a little girl have helped to spread faith, love and kindness across the globe. Check here for the beautiful, brave story of what the Mahe’s chose to do in the face of unspeakable sadness at the loss of their beautiful daughter.

https://www.ksl.com/?sid=46290539&nid=1016